Amsterdam 2015
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| Abstract #2266 - Strengthening HIV service provision | ||||
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Session: 44.6: Strengthening HIV service provision (Parallel) on Thursday @ 16.30-18.00 in C202 Chaired by Simon Gregson, Michael Evangeli Authors: Presenting Author: Mr Mark Platt - UKCAB, United Kingdom |
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| Additional Authors: | ||||
| Aim: Patient-reported outcome and experience measures (PROMs & PREMs) are promoted to direct care of optimal quality that reflects the concerns of patients and carers. Although some measures exist to measure specific constructs, PROMs/PREMs are needed to measure multidimensional health outcomes. | ||||
| Method / Issue: To ensure initial scoping of methods for HIV PROMs/PREMs reflected the concerns, priorities and preferred development processes of people living with HIV, the British HIV Association (BHIVA) chose to collaborate with UKCAB, the UK's Treatment Activist Network, and Public Health England, the country's state funded public health body. Over 18 months members of the project steering group undertook a series of engagement activities with HIV positive people. The activities encompassed a) outreach engagement at a national conference for positive people organised by Positively UK, b) 7 workshops with BME community groups in different English localities, c) workshops with mixed HIV clinic groups in London and south-east England, d) an online survey of UK-wide HIV organisations and community groups e) presentation and discussion for UK-wide HIV clinicians at BHIVA's conference. | ||||
| Results / Comments: Integration of the data sources led to generation of a series of recommendations to guide the development process of PROMs/PREMs for HIV care. The main finding was that respondents were overwhelmingly in favour of metrics that captured and reported on both individual and group concerns and needs. As well as direct medical care, respondents also wanted to address social care, mental health, comorbidities, and emotional well-being. Specific groups also identified issues such as legal and immigration status, as they felt these impacted on their ability to access and use HIV services. These recommendations on PROM item content are supplemented by a recommendation that PROMs and PREMs development involves community researchers at its core. | ||||
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